Today was awesome! We got to hear Dr. Tolar speak about bone marrow transplants and the latest research he is doing we also heard from an ear nose and throat doctor who treats kids with EB. Then we had dinner and enjoyed visiting with Ava, Anton's girlfriend, family. Anton was sleeping through most of the conference and dinner but I know he will be so excited to see Ava tomorrow. We really enjoyed visiting with lots of other EB families today. - July 30, 2014 at 07:58PM http://ift.tt/1r2lUi4
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