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Friday, October 31, 2014

Facebook update [pic] from Help Anton



Eating lunch with Shamu! via Help Anton http://ift.tt/1u1KQLS October 31, 2014 at 01:49PM

Thursday, October 30, 2014

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via Help Anton http://ift.tt/1sMiSNA October 30, 2014 at 03:13PM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376651544219/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376621544222/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376511544233/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376538210897/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376584877559/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376474877570/?type=1 October 30, 2014 at 11:05AM

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via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376441544240/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376384877579/?type=1 October 30, 2014 at 11:05AM

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via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376341544250/?type=1 October 30, 2014 at 11:05AM

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via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376311544253/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376228210928/?type=1 October 30, 2014 at 11:05AM

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via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376204877597/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718375961544288/?type=1 October 30, 2014 at 11:05AM

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via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376154877602/?type=1 October 30, 2014 at 11:05AM

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via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376118210939/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376078210943/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376038210947/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376001544284/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718376181544266/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718375921544292/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718375878210963/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718375861544298/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718375834877634/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718375808210970/?type=1 October 30, 2014 at 11:05AM

Facebook update [pic] from Help Anton



via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/718375768210974/?type=1 October 30, 2014 at 11:05AM

Facebook update from Help Anton

We are having a blast! - October 30, 2014 at 11:05AM http://www.facebook.com/pages/p/142880872427136

Tuesday, October 28, 2014

Facebook update [pic] from Help Anton



via Help Anton http://ift.tt/ZZGW8X October 28, 2014 at 05:57PM

Facebook update [pic] from Help Anton



via Help Anton http://ift.tt/1xBLmxV October 28, 2014 at 05:33PM

Facebook update [pic] from Help Anton



via Help Anton http://ift.tt/135fTLp October 28, 2014 at 05:31PM

Facebook update [pic] from Help Anton



via Help Anton http://ift.tt/135fTel October 28, 2014 at 05:31PM

Facebook update from Help Anton

We had a blast exploring the Natural Bridge Caverns today! - October 28, 2014 at 05:31PM http://ift.tt/1r2lUi4

Facebook update [pic] from Help Anton



On a family vacation with Papa T and Wita, Anton is telling us what the map says. via Help Anton http://ift.tt/1u3WYwm October 28, 2014 at 01:20PM

Saturday, October 25, 2014

Facebook update [pic] from Help Anton



via Help Anton http://ift.tt/1ztB5cf October 25, 2014 at 06:29PM

Facebook update [pic] from Help Anton



via Help Anton http://ift.tt/1ztB48o October 25, 2014 at 06:29PM

Facebook update [pic] from Help Anton



via Help Anton http://ift.tt/1ztB48g October 25, 2014 at 06:29PM

Facebook update [pic] from Help Anton



via Help Anton http://ift.tt/1uWJm0t October 25, 2014 at 06:29PM

Facebook update from Help Anton

So excited to get some gifts! Thank you! - October 25, 2014 at 06:29PM http://ift.tt/1r2lUi4

Friday, October 24, 2014

Enter to win one pair of tickets to a private and intimate Eddie Vedder solo show...

Enter to win one pair of tickets to a private and intimate Eddie Vedder solo show held in a secret location near Seattle on October 30th (plus up to $1,000 to help cover travel and accommodation costs). This is the ONLY pair of tickets being made available to the public for this show.

Each entry is $10 and you can donate as many times as you’d like to increase your chances to win. ($10 one chance, $20 two chances, $50 five chances, etc.)
We are so excited to announce that EBRP Co-Founder @Eddie Vedder is holding a private and intimate solo show in Seattle on October 30 to raise money to cure EB Epidermolysis Bullosa (EB) with 100% of the proceeds going to @EBResearchPartnership. There are only TWO tickets being made available to the public!! Don’t miss out on this rare and amazing opportunity.

Enter for your chance to win this pair of tickets and continue to help #HealEB:http://bit.ly/ev-healEB.



Thursday, October 23, 2014

Facebook update [pic] from Help Anton



Anton's eyes feel better today! via Help Anton http://ift.tt/12lqJwD October 23, 2014 at 05:53PM

Wednesday, October 22, 2014

Facebook update [pic] from Help Anton



Sweet Anton woke up with another corneal abrasion. I took him to the eye doctor today and they put contact lenses in his eyes to protect them while they heal. We are talking about putting lenses in his eyes and changing them out once a month as a way to prevent corneal abrasions. The reason he is getting abrasions is because his eyes are getting dry at night and they get stuck to his eye lids then when he opens his eyes in the morning they tear because they are stuck. The lenses would put a barrier between his eyes and his eye lids so hopefully he won't get more abrasions. #cureEB via Help Anton http://ift.tt/10puJv8 October 22, 2014 at 06:59PM

Saturday, October 18, 2014

Facebook update [pic] from Help Anton



We love Anton's car! For the first time ever he is able to go wherever he wants with his friends in the backyard. via Help Anton http://ift.tt/1qRB0pJ October 18, 2014 at 08:45PM

Friday, October 17, 2014

Anton's New Wheels

Anton showing his skills on his new wheels. This is the first ride on toy he has been able to control all by himself. We had so much fun watching him figure out how to drive it. Thanks Gramps!

Facebook update [pic] from Help Anton



Anton LOVES his new ride! Thanks Gramps! I will upload a video of him driving it in a little while! via Help Anton https://www.facebook.com/142880872427136/photos/a.161932730521950.29743.142880872427136/712819722099912/?type=1 October 17, 2014 at 09:07AM

Thursday, October 16, 2014

Facebook update [pic] from Help Anton



Happy 8th Birthday to my big sister Kenya! via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/712486922133192/?type=1 October 16, 2014 at 07:07PM

Wednesday, October 15, 2014

Facebook update [pic] from Help Anton



Doing dressing change in the living room tonight while watching The Lego Movie with the family. Anton has had his legs in the air like this for about 10 minutes. He has loved to have his legs propped up since he was little bitty. via Help Anton http://ift.tt/1npn9e2 October 15, 2014 at 08:21PM

Friday, October 10, 2014

Facebook update [pic] from Help Anton



Anton woke up and was able to open his eyes today! Praising God he was able to open them, normally his corneal abrasions take several days to heal. via Help Anton http://ift.tt/1uQQQpz October 10, 2014 at 10:27AM

Thursday, October 9, 2014

Facebook update [pic] from Help Anton



The pictures I uploaded today were taken last week. Anton has had an amazing few weeks, he has been happy and pretty much pain free. Today he woke up with a corneal abrasion... EB is such a cruel cruel disorder. via Help Anton https://www.facebook.com/142880872427136/photos/a.161932730521950.29743.142880872427136/709031749145376/?type=1 October 09, 2014 at 11:04AM

Facebook update [pic] from Help Anton



via Help Anton http://ift.tt/1pVdNCg October 09, 2014 at 10:05AM

Facebook update [pic] from Help Anton



via Help Anton http://ift.tt/1shZwFC October 09, 2014 at 10:04AM

Monday, October 6, 2014

Facebook update from Help Anton

Anton has been talking a lot about things he saw in Russia. So far everything he has said has been made up but it has been so cute to hear his stories. Today he told when when he was in Russia he saw Darth Vader and he looked in his eyes. Then he told me that he was Darth Vader too. I said really? He said "ya, I was Darth Vader too." He is so cute. - October 06, 2014 at 12:35PM http://ift.tt/1r2lUi4

Wednesday, October 1, 2014

Facebook update [pic] from Help Anton



Anton has had a great day today! We use Young Living oils and love them but I haven't been using them on Anton lately. A friend suggested I give them a try to get rid of his infection (after giving him antibiotics for 3 weeks without it helping I was pretty sure he was going to have to go into the hospital to get rid of his infections) and after using them for 2 dressing changes his infections are almost totally cleared up and he has less wounds then I have seen in a long time. He had about 10 infected wounds last week and all but one are completely healed. So so excited about this! He has been super happy today and we are FINALLY totally moved back into our house. It took a few days and some really great friends to get all of our stuff unpacked and organized but it is done!!!! Hope you all are doing well! via Help Anton http://ift.tt/1uCFdDH October 01, 2014 at 07:12PM