Watching Super Sam and the Marrow Monsters with the family to get the kids ready for the bone marrow transplant. via Help Anton http://ift.tt/1ADeqJJ February 27, 2015 at 08:32PM
Friday, February 27, 2015
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via Help Anton http://ift.tt/1wqNqrv February 27, 2015 at 09:41AM
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Thursday, February 26, 2015
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John Hudson, his Mama, and a friend of theirs were in the great state of Texas tonight and Anton and I got to have dinner with them! I LOVED listening to Anton and John Hudson chat it up about movies and superheros. Such a neat night! via Help Anton http://ift.tt/1asbk1z February 26, 2015 at 09:26PM
Wednesday, February 25, 2015
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Okay Minnesota Peeps, we are looking into extended stay hotels because the Ronald Mcdonald house has at least a month long wait at this point. Are there hotels or locations that I should avoid? Any hotels or locations you would recommend? I have called a TON of places and have an idea of the prices I just didn't know what if any areas we should avoid :) Thanks! - February 25, 2015 at 02:22PM http://ift.tt/1r2lUi4
Tuesday, February 24, 2015
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Trying to fatten this kid up before his bone marrow transplant so I'm feeding him at 11pm while he slumbers. If you are awake and have any questions about Anton, EB, or the bone marrow transplant now is the time to ask. via Help Anton http://ift.tt/1waWCQI February 24, 2015 at 11:21PM
Monday, February 23, 2015
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About to watch a young man with EB named Robbie Twible on The Ellen DeGeneres Show. This is HUGE for EB awareness. via Help Anton http://ift.tt/1D4LA22 February 23, 2015 at 03:52PM
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Texas has decided to prepare us for Minnesota. Twenty degrees outside and lots of ice (we pretend like it's snow). via Help Anton http://ift.tt/1vswTbr February 23, 2015 at 10:40AM
Saturday, February 21, 2015
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via Help Anton http://ift.tt/1vTCgLD February 21, 2015 at 12:34PM
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Our date to the store was a success! Anton's favorite part was at the end when he got to ride the motorcycle and tractor. - February 21, 2015 at 10:36AM http://ift.tt/1r2lUi4
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via Help Anton http://ift.tt/1D1EC01 February 21, 2015 at 10:36AM
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via Help Anton http://ift.tt/1DEkS5F February 21, 2015 at 10:36AM
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On a date to the store with this little guy! I love this kid so much! via Help Anton http://ift.tt/1GeHwja February 21, 2015 at 09:09AM
Saturday, February 14, 2015
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We will be in a bit of weather shock moving to MN ☺ via Help Anton http://ift.tt/1FbCcPQ February 14, 2015 at 04:23PM
Thursday, February 12, 2015
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Anton hasn't had textured food since July but we decided to try it again in speech today and he is doing great! So proud of this sweet boy! via Help Anton http://ift.tt/1F3npGX February 12, 2015 at 04:45PM
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via Help Anton http://ift.tt/1FBr2kE February 12, 2015 at 01:47AM
Wednesday, February 11, 2015
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Can I just say that Haltom City has the BEST Firefighters EVER! They picked our family to do Christmas for this year and bought our kids a TON of gifts. Then we took them dinner to say thank you and they spent over an hour letting the kids play in their firetrucks and showing them around the fire station. They called yesterday and said they wanted to bring something by for our family. They brought over 7 firefighters and 2 firetrucks and a check to help with the cost of temporally relocating to MN. Then they spent well over an hour with the kids showing them the equipment in the trucks, letting the kids play in the fire trucks, letting them honk the horn and take turns in the drivers seat and passengers seat (they all actually liked the passenger seat because that's where the "boss" sits). Then they stayed and listened to Anton telling them all kinds of stories. Right before they left they all signed Anton's wraps which he LOVED. Anton DID NOT want to throw those wraps away. We are saving the wraps they signed and are going to frame them with the pictures from their visit. We seriously love our local fire department! - February 11, 2015 at 09:55PM http://ift.tt/1r2lUi4
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via Help Anton http://ift.tt/1E2RhPT February 11, 2015 at 09:55PM
Tuesday, February 10, 2015
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While Anton was going potty tonight I thought "maybe I should just put him in the bath with all his wraps on and just let him play, no pain meds and see how he does" so I did and he is having a BLAST. We normally give Anton very strong narcotics before his bath because it is so painful and he is so scared. He normally screams at the top of his lungs even on such strong meds but not tonight. Tonight he is happily playing in the tub without any pain meds. I am so blown away by this gift, this gift of getting to watch my son enjoy something that is normally torture for him. I am praising God for this gift tonight. via Help Anton http://ift.tt/1CSWUDd February 10, 2015 at 08:22PM
Saturday, February 7, 2015
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Update on the BMT: A third donor came up on the registry in January so Dr. Tolar requested blood work from that person to see how close of a match they were. We just got the results back and it turns out that that person is in fact the closest match. Now the team in MN is working with the registry to see when the donor can go for their physical and when they can donate their bone marrow. Everything has to be timed perfectly because Anton will get that person's marrow 24 to 48 hours after they donate it. At this point we are just waiting to hear back on the timing of everything. It will still be a week or two before we know when we will be headed to MN. We are excited to get to Minnesota and start the journey toward healing but we are so thankful for God's perfect timing in all of this! We will keep y'all updated. via Help Anton http://ift.tt/16vYhcT February 07, 2015 at 12:51PM