Monday, July 20, 2015
Facebook update from Help Anton
Day +116 Anton has had several fevers since we have been here but none yesterday or today! We were going back to RMH today but Anton has a pretty deep wound on his knee that they want to get an mri of. I'm not sure if we will get to leave today or not. I will keep y'all updated. - July 20, 2015 at 10:20AM http://ift.tt/1r2lUi4
Saturday, July 18, 2015
Facebook update from Help Anton
Day +113 Our room on the BMT floor is so much fun. We have never been in this room before but it has 4 tvs, and you can control the lights, the screen out in the hall, the shades, and I'm sure many more fun things with one of them. Kenya and Anton were so excited when we walked in the room, Anton quickly told his doctors he wanted to just stay there, ha. He has been in such a great mood today. One of the doctor's asked if we had any questions or if we needed anything and Anton's said "well I just need to know if that is a pureed menu over there". He talked and showed off for all of his doctors today. He had us all cracking up. Anton normally gets one fever every other week and since he had a bone marrow transplant anything over 100.5 is an automatic readmission to the hospital. This time it was a little different because Anton ran a fever three different times today. They are checking blood cultures and I'm not really sure what else. We only give Anton a bath once a week (we change his wraps everyday). Today I gave him a bath and it was pretty awful. He was on a pretty high does of Steriods (he is now on a taper schedule so we can get him off of them) and steroids slow down wound healing. So Anton has had the same open wounds, plus one more, for weeks and weeks. I will be so happy once he is off of steroids so some of these wounds will start to close. Anton's skin is still fraigle but is so much tougher now. I would say his skin is 80% tougher since transplant. The BMT isn't a cure and Anton will always have skin break downs but I am so impressed with the progress we have seen so far! When I was putting new wraps on Anton he said the sweetest thing ever. He said "when I grow up I want to be just like you mommy so I can change people's wraps when they get dirty". It was seriously the sweetest thing ever considering how awful his bath went. This kid is such a gift from God and I tell him all the time how thankful I am that he is our son. Hopefully he won't get any more fevers so we can get out of there in a few days. - July 18, 2015 at 12:36AM http://ift.tt/1r2lUi4
Friday, July 17, 2015
Facebook update from Help Anton
Day +113 So this little cutie had a fever in clinic today and will get admitted back to the BMT floor. I am so ready to go home and this feels like a huge set back to my plan that he wasn't going to get admitted anymore and we would be going home in September (I totally made up that plan and it wasn't anything the doctor's said). I just keep reminding myself of Proverbs 16:9 the heart of a man plans his ways but the Lord directs his steps. I am going to continue to trust God through all of this and know that His ways are not mine. God is good, and faithful, and kind. We will go home when the Lord wills and not a second sooner. - July 17, 2015 at 11:19AM http://ift.tt/1r2lUi4
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