We had our FB page set to update this blog but for some reason it stopped working. I am going to quickly catch you guys up but if you want more details check out Anton's FB page:
https://www.facebook.com/Help-Anton-142880872427136/?ref=tn_tnmn
We found out on November 27th through a CT scan of Anton's stomach that he had intussusception. The most basic way I can explain it is part of his colon went into his intestines which went into his stomach and it all got twisted up. This was not a complication from EB or BMT it is just a random thing that happened. They tried to do an enema with contrast using a live x-ray to fix the problem but it perforated (made a hole) so they had to stop.
The next step was to do a very risky surgery to repair the damage and he would come out of it with an ostomy bag. The BMT team, and surgeons were very clear with us and let us know that if we chose to do the surgery they weren't expecting Anton to survive.
We decided to do the surgery and give him the best chance we could. The surgery took about an hour and the surgeon was able to remove his colon, half of his large intestines and put everything back together. Anton didn't need an ostomy bag afterall. He was in the picu on a ventilator for several days. It was a scary few days but he was able to be extubated and we moved back to the BMT floor. I can't remember how many days he was in the PICU.
We found out on December 10th that where they had put Anton's intestines back together had opened up on the inside and all of his stool and other fluids was spilling out into the area outside the intestines. His incision has started opening on his skin as well and he had stool coming out from his stomach. There was nothing else they could do to help our sweet boy.
God graciously gave us 5 days to love on and spoil Anton before he went to be with Jesus. We even got to have an early Christmas with him!
Anton went to be with Jesus on December 15, 2015 at 6:15 pm. We are heartbroken but so thankful for Anton's life, we miss him more than we could ever express with words but are so thankful we got to be his parents.
Here is the link to a beautiful slideshow Jason made for Anton's funeral.
https://www.youtube.com/watch?v=dL-Q-PUkmLU
For from him and through him and to him are all things. To him be glory forever. Amen. Romans 11:36
https://www.facebook.com/Help-Anton-142880872427136/?ref=tn_tnmn
We found out on November 27th through a CT scan of Anton's stomach that he had intussusception. The most basic way I can explain it is part of his colon went into his intestines which went into his stomach and it all got twisted up. This was not a complication from EB or BMT it is just a random thing that happened. They tried to do an enema with contrast using a live x-ray to fix the problem but it perforated (made a hole) so they had to stop.
The next step was to do a very risky surgery to repair the damage and he would come out of it with an ostomy bag. The BMT team, and surgeons were very clear with us and let us know that if we chose to do the surgery they weren't expecting Anton to survive.
We decided to do the surgery and give him the best chance we could. The surgery took about an hour and the surgeon was able to remove his colon, half of his large intestines and put everything back together. Anton didn't need an ostomy bag afterall. He was in the picu on a ventilator for several days. It was a scary few days but he was able to be extubated and we moved back to the BMT floor. I can't remember how many days he was in the PICU.
We found out on December 10th that where they had put Anton's intestines back together had opened up on the inside and all of his stool and other fluids was spilling out into the area outside the intestines. His incision has started opening on his skin as well and he had stool coming out from his stomach. There was nothing else they could do to help our sweet boy.
God graciously gave us 5 days to love on and spoil Anton before he went to be with Jesus. We even got to have an early Christmas with him!
Anton went to be with Jesus on December 15, 2015 at 6:15 pm. We are heartbroken but so thankful for Anton's life, we miss him more than we could ever express with words but are so thankful we got to be his parents.
Here is the link to a beautiful slideshow Jason made for Anton's funeral.
https://www.youtube.com/watch?v=dL-Q-PUkmLU
For from him and through him and to him are all things. To him be glory forever. Amen. Romans 11:36
