Friday, October 24, 2014

Enter to win one pair of tickets to a private and intimate Eddie Vedder solo show...

Enter to win one pair of tickets to a private and intimate Eddie Vedder solo show held in a secret location near Seattle on October 30th (plus up to $1,000 to help cover travel and accommodation costs). This is the ONLY pair of tickets being made available to the public for this show.

Each entry is $10 and you can donate as many times as you’d like to increase your chances to win. ($10 one chance, $20 two chances, $50 five chances, etc.)
We are so excited to announce that EBRP Co-Founder @Eddie Vedder is holding a private and intimate solo show in Seattle on October 30 to raise money to cure EB Epidermolysis Bullosa (EB) with 100% of the proceeds going to @EBResearchPartnership. There are only TWO tickets being made available to the public!! Don’t miss out on this rare and amazing opportunity.

Enter for your chance to win this pair of tickets and continue to help #HealEB:http://bit.ly/ev-healEB.



Thursday, October 23, 2014

Facebook update [pic] from Help Anton



Anton's eyes feel better today! via Help Anton http://ift.tt/12lqJwD October 23, 2014 at 05:53PM

Wednesday, October 22, 2014

Facebook update [pic] from Help Anton



Sweet Anton woke up with another corneal abrasion. I took him to the eye doctor today and they put contact lenses in his eyes to protect them while they heal. We are talking about putting lenses in his eyes and changing them out once a month as a way to prevent corneal abrasions. The reason he is getting abrasions is because his eyes are getting dry at night and they get stuck to his eye lids then when he opens his eyes in the morning they tear because they are stuck. The lenses would put a barrier between his eyes and his eye lids so hopefully he won't get more abrasions. #cureEB via Help Anton http://ift.tt/10puJv8 October 22, 2014 at 06:59PM

Saturday, October 18, 2014

Facebook update [pic] from Help Anton



We love Anton's car! For the first time ever he is able to go wherever he wants with his friends in the backyard. via Help Anton http://ift.tt/1qRB0pJ October 18, 2014 at 08:45PM

Friday, October 17, 2014

Anton's New Wheels

Anton showing his skills on his new wheels. This is the first ride on toy he has been able to control all by himself. We had so much fun watching him figure out how to drive it. Thanks Gramps!

Facebook update [pic] from Help Anton



Anton LOVES his new ride! Thanks Gramps! I will upload a video of him driving it in a little while! via Help Anton https://www.facebook.com/142880872427136/photos/a.161932730521950.29743.142880872427136/712819722099912/?type=1 October 17, 2014 at 09:07AM

Thursday, October 16, 2014

Facebook update [pic] from Help Anton



Happy 8th Birthday to my big sister Kenya! via Help Anton https://www.facebook.com/142880872427136/photos/a.601724943209391.1073741832.142880872427136/712486922133192/?type=1 October 16, 2014 at 07:07PM

Wednesday, October 15, 2014

Facebook update [pic] from Help Anton



Doing dressing change in the living room tonight while watching The Lego Movie with the family. Anton has had his legs in the air like this for about 10 minutes. He has loved to have his legs propped up since he was little bitty. via Help Anton http://ift.tt/1npn9e2 October 15, 2014 at 08:21PM

Friday, October 10, 2014

Facebook update [pic] from Help Anton



Anton woke up and was able to open his eyes today! Praising God he was able to open them, normally his corneal abrasions take several days to heal. via Help Anton http://ift.tt/1uQQQpz October 10, 2014 at 10:27AM

Thursday, October 9, 2014

Facebook update [pic] from Help Anton



The pictures I uploaded today were taken last week. Anton has had an amazing few weeks, he has been happy and pretty much pain free. Today he woke up with a corneal abrasion... EB is such a cruel cruel disorder. via Help Anton https://www.facebook.com/142880872427136/photos/a.161932730521950.29743.142880872427136/709031749145376/?type=1 October 09, 2014 at 11:04AM