I am so excited to tell you all that Patrice entered us to win a grant to be able to go to the Patient Care Conference (for Epidermolysis Bullosa) that Debra hosts and we WON!!! Anton and I will be headed to Florida at the end of July to stay at an amazing hotel while learning a TON about EB. I can't wait to go meet all the families that I have talked to online for the past year!!!
Patrice, Matt and Jonah will also be there which I am SUPER excited about. I decided I needed to teach Anton who they were because I knew we would be spending a lot of time together so everyday I would show him their picture and say "Patrice, Matt and Jonah" he finally started saying their names and it is so cute!
ENJOY!!!
Oh and as a random side note we just got done with dressing change so that's why I look so rough :) and the bandage on Anton's face is to keep him from rubbing the skin off his nose while he sleeps (so far it has worked).
6 comments:
You are amazing. Anton is in great hands!
Oh, yes, very good job buddy Anton! :) LOVE his smile and joy while he articulates words)
Vanessa, you are not looking rough, you look cool with that bandana !)
PS. I am still waiting for your answer ( foot size and possibly account), the last step to send a parcel. Thanks!
I agree.. you do NOT look rough at all... Hope you enjoy the conference.ML
He is so cute. Looks like your doing a great job with him!!
Sweet baby! We love him very much! And we love all your family, Vanessa!
Just love this video. It is SO positive! I often watch it with my 3yearold. She knows Antosha very well now, and we pray for him often.
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