Facebook update from Help Anton

Day +40 This little cutie is such a strong kid. His right knee has started hurting a lot so we got an xray of his knee and hip which were both fine. His knee seems to hurt him 2 or 3 times a year for several weeks for no reason. He is in quite a bit of pain but he isn't miserable. We didn't give him GCSF yesterday to see if he could hold his numbers on his own and sadly he couldn't. His wbc went from 2.3 yesterday to 0.8 today and his anc went from 2.1 yesterday to 0.5 today. The plan is to give him GCSF everyday until we figure out why he can't keep his counts up. They are doing blood work for different viruses to see if that's the cause, they are doing blood work to recheck engraftment, and if all of that comes back normal and his counts are still falling they are going to do a bone marrow biopsy to see how much bone marrow he is producing. The good news is we know Anton is producing cells otherwise the GCSF wouldn't be bringing his numbers up at all. We just don't know why his numbers are dropping when he is off of GCSF. I will be honest and say I'm freaking out a little just because we don't know why he can't maintain his numbers on his own but my hope is not in these numbers but in God who holds all things together. We received lots of packages from our amazon wish list today which was a fun way to break up this stressful day. Thank you guys so much for taking time to love our family. All of these gifts are such a HUGE blessing so thank you guys so much!!! - May 05, 2015 at 09:40PM http://ift.tt/1r2lUi4