Tuesday, December 29, 2015

Anton Ezekiel Delgado 1/16/10-12/15/15

We had our FB page set to update this blog but for some reason it stopped working. I am going to quickly catch you guys up but if you want more details check out Anton's FB page:


We found out on November 27th through a CT scan of Anton's stomach that he had intussusception. The most basic way I can explain it is part of his colon went into his intestines which went into his stomach and it all got twisted up. This was not a complication from EB or BMT it is just a random thing that happened. They tried to do an enema with contrast using a live x-ray to fix the problem but it perforated (made a hole) so they had to stop.

The next step was to do a very risky surgery to repair the damage and he would come out of it with an ostomy bag. The BMT team, and surgeons were very clear with us and let us know that if we chose to do the surgery they weren't expecting Anton to survive.

We decided to do the surgery and give him the best chance we could. The surgery took about an hour and the surgeon was  able to remove his colon, half of his large intestines and put everything back together. Anton didn't need an ostomy bag afterall. He was in the picu on a ventilator for several days. It was a scary few days but he was able to be extubated and we moved back to the BMT floor. I can't remember how many days he was in the PICU.

We found out on December 10th that where they had put Anton's intestines back together had opened up on the inside and all of his stool and other fluids was spilling out into the area outside the intestines. His incision has started opening on his skin as well and he had stool coming out from his stomach. There was nothing else they could do to help our sweet boy.

God graciously gave us 5 days to love on and spoil Anton before he went to be with Jesus. We even got to have an early Christmas with him!

Anton went to be with Jesus on December 15, 2015 at 6:15 pm. We are heartbroken but so thankful for Anton's life, we miss him more than we could ever express with words but are so thankful we got to be his parents.

Here is the link to a beautiful slideshow Jason made for Anton's funeral.

For from him and through him and to him are all things. To him be glory forever. Amen. Romans 11:36


Mom to 3 said...

I have followed Anton's story since you brought him home. Thank you for sharing the beautiful video. I pray that God comforts you and gives you peace.

goodie girl said...

Thank you for sharing so much of your lives with me and so many others. You have shown Jesus to so many of us. Now may I so Jesus to you. Blessing to all of Anton's family.

Krystal said...

My heart breaks for all of you! I learned of Anton when Patrice was first working on getting him a family. Please know that I've been praying for you. I'm thrilled that Anton is in heaven with Jesus, free of pain, but of course I wish he could have been healed here on earth.


Karen said...

We watched Anton's slideshow with tears in our eyes--sadness at your great loss, and with great thankfulness that Anton was able to receive so much love from your family before he died. We will miss seeing the photos and updates on him, but will continue to pray for your family as you move through this time of grief.


verna said...

Loved your little Anton from the moment you introduced him to the world online!
WE will continue to pray for your family as you grieve this wonderful boy, knowing that someday the tears will be wiped away and you will meet Anton and Melody & Madison again!