Wednesday, March 11, 2015

Facebook update [pic] from Help Anton

Day 2 of work up: Today wasn't as stressful because I didn't have to unwrap Anton a whole lot but it was a little emotionally draining because Anton was not happy for most of the day. We met with the social worker and that appointment was fun because she was just getting to know us better and asked a lot of questions about what is comforting to us things that don't work well ect... Anton's eyes were hurting during this appointment and he just wasn't being his happy little self. Then we had an appointment with Infectious Disease so I made Anton wear a mask and he was NOT happy about this. He cried and complained most of the time were there until he fell asleep (which is totally out of character for him). I actually enjoyed this appointment (besides the fact Anton was sad) because they were really interested in Anton's story and had a lot of great information for us. They said skin infections wont disqualify Anton from having the Bone Marrow Transplant done because it is nearly impossible to get someone with EB completely infection free. Anton fell asleep about half way through that appointment which made things a little bit easier. Our last appointment was a pharmacy consult. I know most of the things she shared with me already but was a little bit overwhelmed with the amount of medication he will be taking... Overall today was easier than yesterday but not totally great. I'm sure none of these days will be super fun though. via Help Anton March 11, 2015 at 02:49PM

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