Tuesday, July 21, 2015

Facebook update from Help Anton

Day +117 Anton's knee is hurting pretty bad and he isn't moving it anymore. He is getting dilaudid every 4 hours but still screams any time you move him around. His MRI came back clear yesterday showing no signs of infection! We just got back from getting his knee xrayed so we will see what that shows. The plan (I think) is to keep Anton in the hospital for awhile while they figure out what (if anything) is going on with his stomach. He will have an upper and lower scope done by GI soon. Dermatology, infectious disease, and the BMT team are all working together to figure out the best way to help Anton's knee. He is fine as long as I'm not picking him up. He did physical therapy like a champ today! Last night Prayers for Cole mom and Prayers For Abigail Updates mom, and I all hung out in the family lounge for a little bit. It was fun to connect with other EB mamas! Overall today has been a pretty good day. Anton was happy most of the day. - July 21, 2015 at 06:39PM http://ift.tt/1r2lUi4

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