"...After about 24 hours (after the Brown family decided to adopt this baby still in the womb) they found out that Matt had a rare condition known as hydranencephaly. This is a brain disorder where the brain fails to develop correctly. The front part of the brain is fluid instead of functioning tissue. The disease is a terminal, which gave Matt roughly 4-12 months to live. This condition technically deemed him unadoptable; normally one with this condition would become the property of the state where he would be institutionalized and made comfortable until he passed.
This placed the Browns in a very difficult situation. Do they go the hard road of the cross, knowing the gut-wrenching pain that would soon ensue from having to watch this child die or should they turn him back over to the state? They chose the former and I know today they can joyfully say with tears in their eyes that without a doubt that the phrase "it was worth it" doesn't do justice. It was beyond "worth it". It was true Christianity in action and provides a bittersweet joy that is beyond words.
My wife and I have learned much from the Browns. Oh how I long for more families like them! What would it look like in our culture of death for more Christians to be willing to take the hard road of the cross and lay down their lives for the poor, weak and defenseless...
...This section from one of their blog posts was especially moving for me. I think it will encourage you as well:Matt doesn't respond positively to all the love and care we shower on him, and despite the fact that I knew in my head he wouldn't, I still want him to smile back at me. Instead of smiling, he either stares at me blankly or screams in response to my best efforts to communicate with him. The discouragment I feel at his failure to thrive only evidences the selfishness of my endeavors. Before Matt, I was tempted to believe I loved my children with at least an inkling of selflessness. I now know that I expect at least some return for my investment. At the very least, I would like a two-month smile and a 3-month squeal of delight in response for the long nights and endless feedings. I am humbled further to think of the earthly reward I am tempted to expect from my older children. Each day with Matt, it looks more and more like all of our reward is being deposited in heaven (or not, because God loves a cheerful giver, and sometimes, I am just not). Frankly, I am not all that happy about the choice of accounts. While I may have previously thought I wanted to deposit all of my treasure in heaven, I now know I am more or a 50/50 or even 75/25 kind of girl; I would like some treasure in heaven and most of it here.
It may be this very realization of further indwelling sin that God seeks to remedy in part through our love of Matt. I once thought we were called to care for orphans and widows in their distress because by caring for them, we would see buckets of fruit in our own lives. I now believe, we are called to selfless acts because in our attempt to selflessness, our selifishness is exposed. I am utterly incapable of selfless love apart from Christ at work in me. So, exposed and helpless in the wake of selfishness, we have no choice but to rest completely in Christ for salvation. By faith alone, we are saved. Through our attempts at "good" works, we become all the more aware of our need for salvation. Praise God that His grace and love cover us completely and instill in us the hope of heaven!
It is sin to seek self above the good that God has willed for our lives. Sin seprates us from the love that Christ has for us. It is this very separation--the separation that death embodies--that Christ died to overcome. Death stinks. We all hate it, but God more than hated death. He did something about it. Jesus came to overcome death once and for all at the cross. Our hope isn't in life now. Our hope, like it or not, is in heaven. Our hope is not in miracle cures, our hope is in a sound doctrine of suffering that begins and ends in the cross.
So, I am thankful for Matt because he has further exposed the blackness in my heart and my need for the the forgiveness found in Jesus. I am sick because I seek physical healing, signs and wonders, rather than the One to whom the signs point. Jesus is our hope. Spiritual healing is our calling and our destiny in Christ. Someday I will watch Matt run and play and laugh. Until we finally make it home, we rest in His finished work and long for its realization in heaven..."
(read the entire story here from "Take Your Vitamin Z" Blog)
Here is the link to the families blog.
Soli Deo Gloria!