Good Times Delgado Style: April 2015

Thursday, April 30, 2015

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1DGa5ST April 30, 2015 at 10:31PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1I2fNX4 April 30, 2015 at 10:31PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1DGa3dK April 30, 2015 at 10:31PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1I2fLOQ April 30, 2015 at 10:31PM

Facebook update from Help Anton

Day +35 Today was another good day. We went to journey clinic just for labs. They called and said his ANC was 0.3 and WBC was 1.0. We did another dose of GCSF today so hopefully those numbers will rise soon. We got to take some family pictures today thanks to a photographer that does pictures for free for families at RMH! We should get them back on Monday and I can't wait to share them with you all. I got to hang out with Audura and Baby Reid tonight for a little bit and got to hold Reid for the first time. He is so cute and was such a snuggle bug! We go to journey clinic tomorrow so hopefully we will have more information about Anton's levels then. Have a great night! #helpanton #causethewave #healeb - April 30, 2015 at 10:31PM http://ift.tt/1r2lUi4

Wednesday, April 29, 2015

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1JajwPi April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1bWnnVX April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1JajvuP April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1bWnnVR April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1JajwPe April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1bWnnVP April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1JajvuL April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1bWnm44 April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1JajvuE April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1bWnnVL April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1JajwyW April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1Jajvem April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1Jajvei April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1bWnnFt April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1JajwyQ April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1bWnnFr April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1JajwyI April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1bWnnFo April 29, 2015 at 07:42PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1Jajve8 April 29, 2015 at 07:42PM

Facebook update from Help Anton

Day +34 We had to go to journey clinic today to see where Anton's levels were. Judah loves going with us and he does a great job at keeping Anton entertained. Judah is showing a huge interest in reading so I did some phonics with Anton and Judah while we were at journey clinic. Anton's WBC is 0.8 and his ANC is 0.2. Both of those numbers are SUPER low. He is not maintaining his levels very well on his own so they are checking some blood work for different things that could be causing him to have a hard time. We will be doing GCSF everyday until his numbers stay up. He also has to stay in our room at Ronald McDonald or he can be outside but he can't be around people (well other than our family) until he can maintain those numbers. Anton hasn't shown much interest in eating for the past few months but today he ate by mouth at every meal time! He had yogurt for breakfast, sweet potato baby food for lunch and mashed potatoes for dinner. He is still getting formula as well but I'm so exciting he is eating by mouth again. Other than his crazy low numbers he is doing great. - April 29, 2015 at 07:42PM http://ift.tt/1r2lUi4

Tuesday, April 28, 2015

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1zmqOiW April 28, 2015 at 10:12PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1PVcF09 April 28, 2015 at 10:12PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1zmqMry April 28, 2015 at 10:12PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1PVcCRX April 28, 2015 at 10:12PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1PVcCBD April 28, 2015 at 10:12PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1zmqO2u April 28, 2015 at 10:12PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1PVcCl9 April 28, 2015 at 10:12PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1Ks15Xk April 28, 2015 at 10:12PM

Facebook update from Help Anton

Day +33 Today was a very fun day! We didn't have clinic today which was nice. I went to the chiropractor again today and feel 90% better! We spent a lot of time today cleaning and rearranging our space. They had a pizza lunch and then Delta Rae had a little concert for all of us at RMH which was so neat. The members of the band were so sweet and really enjoyed spending time with the kids. A few of them sat with us at lunch and then during the show they let the kids play on toy instruments then when they were done they let them play on their equipment. All of our kids were shy at first but then enjoyed hitting the drum :) After dinner the RMH celebrated April birthdays. Our buddy Elliott turns 6 tomorrow so we were excited to get to celebrate his birthday with him! They let each of the non-birthday kids get a toy as well and had face painting, a bubble making station, and an exciting round of musical chairs. Everyone had a blast. Then we went outside and let the kids burn off some energy after that they played in the castle. This is the the most Anton has done since transplant and he had a blast. I'm sure we will take it east the next few days to make sure he isn't over doing it but he had so much fun today!! - April 28, 2015 at 10:12PM http://ift.tt/1r2lUi4

Monday, April 27, 2015

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1GrbE9d April 27, 2015 at 09:38PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1ELBOsn April 27, 2015 at 09:38PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1GrbCyd April 27, 2015 at 09:38PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1ELytJJ April 27, 2015 at 09:38PM

Facebook update from Help Anton

Day +32 Today was a good day! We are amazed at how confident Anton is getting with standing and getting around on his own. He played a game with Judah today and he would sit in his chair then stand up then sit and stand, he did this over and over. He is also getting really good at standing on his own. I have been having pain in my neck that shoots down my back on and off for about 2 weeks now. Today is was so bad, it hurt to do anything besides look straight ahead. I couldn't turn my head at all without awful pain. It hurt to breathe and laugh so I went to the chiropractor. Turns out I have a dislocated vertebrae in my neck. I got adjusted today and will get adjusted again tomorrow. I can move my head a little bit more tonight so hopefully after getting adjusted tomorrow I will have full range of motion. We had a clinic visit today for Anton and got to see one of our favorite people Ms. Megan. Anton slept through most of the clinic vist. Judah enjoyed playing on the tablet and receiving endless snacks from the food pantry. Anton's ANC was 0.4 so he got a dose of GCSF while we were there. I don't remember what his WBC was. We had dinner at RMH, then the kids got to learn how to make mozzarella cheese. We came back up to the room after that and watched a movie. Today was a long and fun filled day!! - April 27, 2015 at 09:38PM http://ift.tt/1r2lUi4

Saturday, April 25, 2015

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1QuViVl April 25, 2015 at 09:22PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1QuVh3z April 25, 2015 at 09:22PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1QuViVe April 25, 2015 at 09:22PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1b2xgjn April 25, 2015 at 09:22PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1b2xgjh April 25, 2015 at 09:22PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1QuViEP April 25, 2015 at 09:22PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1b2xhUq April 25, 2015 at 09:22PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1QuViEK April 25, 2015 at 09:22PM

Facebook update [pic] from Help Anton

via Help Anton http://ift.tt/1b2xhDW April 25, 2015 at 09:22PM

Facebook update from Help Anton

Day +30 If you don't want to read this whole update you will want to go to the end for some amazing news!!! We got back to the hospital around 10am and Trisha told us how amazing Anton did and how easy he was! She took off and we packed up Anton's room because he got discharged from the hospital!!! We got home around 1 pm and went to the gym (in the basement) to run! I have only worked our once since we got here and it is something I really enjoy doing so it was fun to run with Jason while the kids played on tablets :) Then we came back upstairs and hung out together until it was time for dinner. We had a great meal thanks to RMH and then played some board games. Anton has done great his first day home. He was a little sleepy and threw up but other than that it's been easy! We are glad to be home and back together with the rest of our family. So here is the most exciting news I could bring you about transplant thus far... Are you ready??? Okay here goes... They tested Anton's engraftment at day +28 and his t-cells are 100% donor and his cd15 cells are 90% donor. This means that the donor cells are producing almost all of the calls in Anton's body!!!! This is amazing for +28 days after transplant. My heart is overwhelmed with praise toward God. We are so so thankful for how well Anton is doing. God has answered so many prayers and we are just so thankful!!! WBC 2.2 ANC 1.1 - April 25, 2015 at 09:22PM http://ift.tt/1r2lUi4

Facebook update from Help Anton

Day +29 Today was a great day. Judah spent the day at the hospital with us and we all had a blast. The boys played on the playmate together, they played cars, played with tablets, painted, and watched cartoons. Anton got GCSF because his ANC was low today. The most exciting part of the day for me was when my friend Trisha came to the hospital to stay the night with Anton so I could go back to RMH and spend time with Jason, Kenya, and Judah. Trisha's 9 year old son Prayers For Charlie Knuth has EB and has received 2 bone marrow transplants. I knew Anton was in great hands and I seriously didn't worry about him, not even once!! Trisha, Anton has a blast with you and we are so thankful you were able to stay the night with him!!! After we left the hospital we had dinner at chili's and I enjoyed a night away from the hospital. WBC 1.5 ANC 0.7 - April 25, 2015 at 09:08PM http://ift.tt/1r2lUi4

Pages

Thursday, April 30, 2015

Wednesday, April 29, 2015

Tuesday, April 28, 2015

Monday, April 27, 2015

Saturday, April 25, 2015